I Am And So Are You! Moments of clarity after breast cancer

Growing older after breast cancer is such an amazing gift. I often wonder if everyone begins pondering life’s beauty and mystery with the same intensity as they age. It’s easy to think that, because I’ve dealt with my mortality a bit earlier than someone who hasn’t had breast cancer, I might tend to be more introspective, more interested in why we are here. I always find it encouraging when I see or hear something that tells me there are people all over the world seeking the answers to life’s often impenetrable mysteries simply because it gives their existence more meaning.

I happened to see Tom Shadyac on a talk show several months ago talking about his documentary movie, I Am. Tom is the comedian, writer and director who brought us the likes of Bruce Almighty; Liar, Liar; and Ace Ventura. After suffering a head injury while biking, his life took a dramatic turn. Although he’d been contemplating life’s bigger questions for some time (which is evident even in some of his movies), his injury put him on a more serious quest.

The result is his film, I Am. Essentially, it explores human connectedness, happiness and the human spirit. Tom and his film crew interviewed scientists, religious leaders, environmentalists and philosophers in an attempt to get a glimpse of the bigger picture. He posed the question, what’s wrong with the world and what can we do about it?

I think most of us have pondered this same question. I sometimes have moments when I am so overwhelmed with the problems we face in today’s world that I actually wonder why I fought so hard to live. I don’t know about you, but I am sick and tired of seeing worst-case scenarios played out endlessly on the news, or in television programs, or even when I overhear people talking.

sun and green leaves

Click the photo to learn more about the mind-body connection.

Once, while I was undergoing chemotherapy and having a particularly difficult time of it, I went into my backyard to sit in the sun and sort of regroup. I distinctly recall being overwhelmed by the beauty that surrounded me in that quiet setting. I remember being moved to tears by the sheer intensity of how astounding a leaf was with the sun creating shadows and light on its surface. The green was breathtaking. I held the leaf close to my face and inhaled its essence. I can still feel how cool and soothing it was on my cheek. In that moment I felt so connected to all living things. I couldn’t tell where I stopped and the leaf began. I understood we truly were one and the same.

And that’s sort of what watching I Am did for me. It was a gentle reminder of our connectedness. If you haven’t seen it, you should. Not everyone will feel (or need) the same connection I did, but I do think it will serve to remind anyone that we truly are all in this together, and one easy step to making things better is to step back and marvel at the natural world we live in.

What a great time to hold onto this loving concept, as we move into the coming warm summer months. This time of year provides us with so many opportunities to let the sun shine in our hearts, thoughts and actions.

Have you ever had a moment of clarity and connectedness like this? I’d love to hear about it.

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Zen Habits: How to be happy

watering flowersI’ve been thinking a lot lately about how to be happy — pondering the question, “How is the best way to live?” 

There are plenty of resources for discovery in this area — probably too many! But every time I read something from the blog, ZenHabits, I feel like it’s written specifically for me. I immediately have a desire to print it out, fold it up and carry it with me all day.

This week, its author posted something I think is worth sharing. Call it minimalism, Voluntary Simplicity, call it active gratitude – but something about the way this is written feels like a bright, glowing sun to me. It feels less preachy, and more meaningful, than other iterations I’ve read before. And its suggestions feel possible. Easy. See what you think. 

How to Live Well, by Leo Babauta

…The truth is, you don’t need a lot to live well — you just need the right mindset.

Here’s what I’ve learned about living well on little:

  1. You need very little to be happy. Some simple plant food, modest shelter, a couple changes of clothes, a good book, a notebook, some meaningful work, and some loved ones.
  2. Want little, and you are not poor. You can have a lot of money and possessions, but if you always want more, you are poorer than the guy who has little and wants nothing.
  3. Focus on the present. Stop worrying about the future and holding onto the past. How much of your day is spent thinking about things other than where you are and what you’re doing, physically, at this moment? How often are we living as opposed to stuck thinking about other things? Live now and you live fully.
  4. Be happy with what you have and where you are. Too often we want to be somewhere else, doing something else, with other people than whoever we’re with right now, getting things other than what we already have. But where we are is great! Who we’re with (including just ourselves) is already perfect. What we have is enough. What we’re doing already is amazing.
  5. Be grateful for the small pleasures in life. Berries, a square of dark chocolate, tea — simple pleasures that are so much better than rich desserts, sugary drinks, fried foods if you learn to enjoy them fully. A good book borrowed from the library, a walk with a loved one in the park, the fine exertion of a short hard workout, the crazy things your child says, the smile of a stranger, walking barefoot on grass, a moment of quiet as the morning wakens and the world still rests. These little pleasures are living well, without needing much.
  6. Be driven by joy and not fear. People are driven by the fear of missing out, or the fear of change, or the fear of losing something. These are not good reasons to do things. Instead, do things because they give you or others joy. Let your work be driven not because you need to support a lifestyle and are afraid of changing it, but by the joy of doing something creative, meaningful, valuable.
  7. Practice compassion. Compassion for others creates loving, rewarding relationships. Compassion for yourself means forgiving yourself for past mistakes, treating yourself well (including eating well and exercising), loving yourself as you are.
  8. Forget about productivity and numbers. They matter not at all. If you are driven to do things to reach certain numbers (goals), you have probably lost sight of what’s important. If you are striving to be productive, you are filling your days with things just to be productive, which is a waste of a day. This day is a gift, and shouldn’t be crammed with every possible thing — spend time enjoying it and what you’re doing.

What about you? Do you have any wisdom for living a contented, fruitful, happy life?

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Mothers and Breast Cancer: A Courageous Journey

 Courtney Bugler

It is my hope that my baby will grow up never having to learn the lessons I did. Except for this: Other people need you. Help them where you can. Try to make them laugh. And it’s okay not to love pink. But you'd better get used to it. - Courtney Bugler

Yes, there is an official day to celebrate mothers, but we really celebrate mothers every day. We have mothers, we know mothers, we are mothers. (Well, sort of. I am no one’s biological mother, but I am mom to my two mini schnauzers!)

But how does mothering change when dealing with breast cancer? Some women are already mothers, whose relationships with their children will have its ups and downs as they navigate the cancer journey together. Stephanie Bernstein Wagner, along with a group of other women, developed a fantastic website, BreastCancerMoms, that is information central for parenting with breast cancer.

Some women are diagnosed before they have the chance to be moms and may worry about what the future holds. One of those young mothers is Courtney Bugler, Associate Director of Development at Young Survival Coalition, and she was kind to share her story with us:

Life, In the Shadow of the Pink Ribbon

2006 was supposed to be the best year of my life. I was 28 years old, I had a great job, my husband had just accepted a job offer in Atlanta and we had just bought our first house. We were trying very hard to have a baby… very hard. Alan kissed me that New Year’s Eve and we toasted to our good fortune and the year to come. I had no idea that lump I’d found a month earlier was breast cancer. I was diagnosed in February and 2006 turned out nothing like we had planned.

That big new house we bought? The rooms sat empty. The room I had planned to use as a nursery held empty boxes. Moving boxes, shipping boxes, boxes that held housewarming gifts – all empty. It hurt to even walk past that room. It didn’t matter that Alan and I had frozen embryos to preserve our dream. I felt like I would never have that family we had planned. I wondered if I could ever fill that room. As if breast cancer hadn’t taken enough.

People sometimes refer to their cancer experience as a gift.  Not me. At least not then. That big pink ribbon wrapped package was not for me. I clearly hadn’t registered for it. And I definitely couldn’t exchange it for better hair, the size 6 body I used to have, and the baby I wanted. And I certainly wouldn’t re-gift it, either. But maybe, just maybe – like the hideous bowl someone cared to give me for my wedding, the one I definitely did NOT ask for, my breast cancer experience is a part of me. And like that bowl, breast cancer sits on the shelf of my life, next to all the pretty crystal and china. It sticks out.  And it’s ugly. But I reach for it a whole lot more than I thought I would.  It’s a part of the collection now and I can’t give it back.

Somewhere in the middle of my ugly serving bowl of breast cancer, something in me switched. It was two years after my treatment that I realized I still could have that life that I had planned for. That maybe breast cancer didn’t have to keep me from the life I had dreamed of that New Year’s Eve. After careful consideration, discussion with my doctors and some help of modern medicine, I got pregnant. This was no small feat, considering I had ER-positive breast cancer and I had recently removed my ovaries. Yes, you read that right. At thirty-one years old, I was a POST menopausal woman who used her frozen embryos to get pregnant. I was always good at science fairs.

I conceived my son in the shadow of my breast cancer experience. He is a baby that was created before my treatment. A child that I waited 3 years to carry. Aidan is the happy ending that some days I thought would never come. He is the time I can point to my body and say, “This time you didn’t fail me. This time you got it right.” And when I walk past that room, instead of empty boxes, I see Goodnight Moon. Instead of discarded cardboard, I see the greatest gift of all, my son Aidan sleeping with his blankie.

Who knows what the future holds for me, or for the thousands of young survivors around the world? Having breast cancer was a defining moment in my life. It’s the line that separates me. Before Cancer and After. My son will never know mommy before breast cancer. What he will know, however, are the women who already love him like family. The women in the pink boas who swarmed him when he came with me to last year’s Conference for Young Women. The ones who are watching him grow up on Facebook. Watching these women with my child, knowing I spend my time protecting and working for them both; seeing their hope reflected in his smile… Maybe that’s the gift.

It is my hope that my baby will grow up never having to learn the lessons I did. Except for this: Other people need you. Help them where you can. Try to make them laugh. And it’s okay not to love pink. But you’d better get used to it.

 

 

 

Posted in Breast Cancer Survivors, Inspiration, My Story, Support Groups, Uncategorized, Young Survivors | Tagged , , | 3 Comments

On Contact: Amoena’s adhesive breast form works with you

Don’t miss our short video, about wearing Amoena Contact adhesive breast forms. The model in the film is breast cancer survivor and Contact wearer, Beatte.

 

[Transcript: When I was diagnosed with breast cancer my life changed. I was sensitive to the changes my body had gone through and wearing a breast form felt strange.

But now, with Amoena Contact, I wake up ready to take on each and every day.

The skin preparation tonic removes dry skin and natural oils.  Preparing the skin’s surface.

The back of the breast form is designed with a special adhesive. The adhesive adheres securely to the skin’s surface, for a perfect fit.

I like that it feels like a part of me. I enjoy the morning moments and reflecting on the day that lies ahead.  I can rely on my Contact breast form every day. The secure fit gives me the freedom and self-confidence to take on new challenges.

Contact offers me even more comfort because of a special temperature equalizing feature, Comfort+. No matter what I do, or how active I am the breast form feels natural with every move I make.

Every day I take some time to relax, and listen to my body... refocusing on the rest of the day...like what to wear to dinner! I have a wider range of fashion choices – from low cut tops to strapless dresses.

Thanks to my Amoena Contact, I often forget I am wearing a breast form.

I feel confident in every aspect of my life, and every situation.

I enjoy the simple things...like a quiet dinner...

Life has taken on a whole new meaning.

Washing my breast form has become a part of my daily routine, just like taking off my makeup and brushing my teeth.

Washing the form every night will remove dead skin cells and natural oils that might have built up over the day. Clean the breast form daily with the specially formulated Soft Cleanser. Use a circular motion and a decent amount of pressure. Dry the cup side before storing the form.

After removing the form I use the skin balancing gel crème. I care for my Contact breast form like any other part of my body.

Amoena’s Contact breast form has allowed me to discover a whole new sense of freedom.]

 

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Wearing Amoena Contact breast forms: My story

Andrea Coomans, Amoena’s Regional Manager, West, is a 20-year breast cancer survivor and a busy mom. In this guest post, she tells it like it is – and tells why she loves her Amoena Contact breast form.

Andrea Coomans, Amoena USABusy, busy, busy, How many of us are busy?? I am a mother of three sons, who are 9, 13 and 15. Yes, two teenagers – joyous! They play volleyball, basketball, tennis and soccer; they ski, sled, swim, mountain bike and hike. They also play the tuba and percussion. We have a 75-lb Golden Doodle who is very energetic. That is a lot of busy, busy. Did I mention that I work full-time? I work for a brilliant company, Amoena, and love my work — but that also makes my life busy, busy, busy.

I am a 20-year breast cancer survivor and I wear a breast form.  Do I have time to worry about my breast form in my everyday activities? Absolutely not, I don’t have time to think about it. I LOVE my form. My morning routine probably looks a lot like many of yours. I am up at 6:00 a.m., breakfast with my boys, shower, attach my form and dress and by 7:00 a.m. my computer is on and I’m checking work issues and what is going on. Then it’s carpool to junior high at 7:20 a.m. When I return, my 9-year-old is up and ready for breakfast; thankfully my husband takes him to school and walks the dog! At 8:00 a.m. my work day begins, and I have appointments with customers, fitting ladies during a promotion, educational and medical appointments, flying all over the West Coast and even sometimes Atlanta – any variety of things to do! At 5:30 p.m. I run on the track for 2-3 miles with my boys and sometimes the dog comes too! Six-thirty is  dinner with my family and family time, then by 9:30 p.m. I am powering down, making a last check of email and tying up loose ends. Finally at 10:30 p.m., I take off my breast form and wash it thoroughly. It has been through the wringer all day, every day!

When I bike, hike, ski, swim, carpool, run, play tennis, chase around with my sons, walk my dog, go through airport security, run through airports, visit with accounts, visit with medical facilities, fit breast cancer survivors in promotions, sit in meetings and go about my life, I do not want to think about my breast form. Is it moving around? Is it popping out of the top of my bra? When I lean over, can anyone see that I am wearing a breast form? Nevermind that I don’t want to feel the weight pulling away from me as I move around. My form stays attached all day long, with all my moving around and with my perspiring as I run, exercise, etc. It never moves, never shifts; I never feel the weight. I just don’t feel it and forget I am wearing a breast form.

Phew, I am tired just writing how busy life can be! I wear a Contact breast form because it allows me the freedom to be as active as I am, it allows me to be busy, busy, busy, it allows me to be me. Would I wear anything else? Are you joking me? Why would I want to wear anything but an Amoena Contact form, it is the best breast form available and as busy as I am, I deserve the best. Don’t you?

Amoena Contact adhesive breast form

Click to learn more about Contact in this new video.

Editor’s note: Don’t miss the new video about Amoena Contact’s place in a busy lifestyle. It includes a quick overview of how easy it is to wash and care for the Contact breast form.

 

Posted in Breast Cancer Survivors, Breast Forms, Mastectomy Products, My Story, Options After Surgery, Uncategorized | Tagged , , , , , , | 2 Comments

A Change in Perspective: My Amoena World View

 

Amoena Germany

It's early spring at Amoena Germany. The daffodils and bright yellow awnings, cheerfully greeted me on my visit.

Last week, I had the pleasure of visiting the Amoena corporate headquarters in Germany. About 40 minutes south east of Munich, in a little village called Raubling, you can find the quaint corporate office bordered by farmland and the majestic Alps.

In my almost 15 year tenure at Amoena, I had not yet visited our Raubling office and had not met, face-to-face, many of the people that I communicate with on a weekly (and sometimes daily) basis. As I walked around the building, I was greeted by familiar voices (and some familiar faces, thanks to Skype!) and at some point, I felt like I was very much at home there – not a foreigner or a visitor, but a returning family member.

I was there to attend a workshop – a “computer-banned, sit around in a half-circle” kind of workshop. We were expected to put on our “global hats”, open our minds, put ourselves in each other’s shoes, discuss ideas…and compromise. My global colleagues represented Canada, Poland, France, Germany and Great Britain – it was a dynamic group that, in the end, would emerge as one team.

During my two day workshop, I discovered something: Amoena is a global company, with offices all over the world, and even though we may live in different places, speak different languages and are a product of our different cultures, we all serve the same woman – the breast cancer survivor who deserves to live her life to the fullest and with the utmost dignity.

Breast cancer is not just a disease affecting women in the United States…or Canada…or England, but it’s a disease that affects women from every nation. We understand that, and we are passionate about being a true companion to women after breast cancer surgery, regardless of where in the world they may be.

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Buy a Valletta, Donate to Cancer Schmancer

Television and movie star Fran Drescher was unforgettable in her most famous role as “The Nanny.” …Want to know something funny? She was told early in her career that she’d never make it in “the biz” unless she lost her thick New York accent.

I bet she has a good chuckle about that every once in a while.

Cancer Schmancer logoOne thing that’s no laughing matter to Fran, however, is cancer. She is a survivor of a multiple-times-misdiagnosed case of uterine cancer, and because of that, she is now a well-respected health advocate and founder of the Cancer Schmancer Movement. Its mission? Early Detection: 

“…[by] education, prevention and early detection, we can save lives TODAY.  By empowering ourselves and the women we love to become medical consumers; to listen to our bodies, ask the right questions of our doctors and seek second opinions, we can prevent cancer and, if we still end up with it, detect cancer in its earliest stages.  At Cancer Schmancer, we aren’t reinventing the wheel.  We are shedding light on a method that works to end mortality due to late stage diagnosis.”

One of the Movement’s mottos is “Stage 1 is the cure.” Some might find it to be somewhat hopeless; that, because there is no actual “cure” yet, we have to accept that people will continue to GET cancer. But I find it a welcome change of pace to say, hey, let’s deal with what we do know: when cancers are found in the early stages, 90% survive. (If you have time, read this 2008 Wired magazine article on the topic.)

**To support the good work that Cancer Schmancer is doing to educate men, womenValletta camisole white and young people about knowing their bodies and early detection, CancerShopUSA is donating 100% of the proceeds from sales of the Amoena Valletta tank top to Cancer Schmancer. This promo-fundraiser goes from now until April 11.

Amoena is proud to help such a worthwhile organization get the word out!

Posted in Breast Cancer Advocacy, Breast Cancer Survivors, Early Detection, Intimate Apparel, Support Groups, Uncategorized | Tagged , , , , , , , , , , , | Leave a comment

Three reasons spring is a great time for a bra fitting

Truth be told, any time is a good time to visit a certified fit specialist and have your bras and breast forms checked and fitted. But why spring? We have three great reasons.

  1. Warmer weather means different kinds of clothes. In winter, you can wear your bulky sweaters, your fuzzy fleece (…fleeces?) and your jacket, and wear just about any bra underneath. But in the springtime, the tee-shirts and tanks come out from under-the-bed storage, and those require special types of bras. There’s such a thing as a “T-shirt bra,” did you know that? It’s the
    fitting room at a lingerie boutique

    Who wouldn't love to be fitted in this pretty room?!

    one with a smooth cup, and usually doesn’t have lace that could show under the soft shirt fabric. For tanks and sundresses, you might want something with a convertible or clear silicone strap option. You might even want to try one of our temperature-equalizing products, to help keep you cool.

  2. Springtime might motivate you to get active again if your January resolutions fell flat in February, and for that, of course, you need specific support. A comfortable sports bra might mean the difference between choosing to workout or skipping it. One other insider tip: Fashion houses release their Cruise Collections in mid-winter, so by April they can start going on sale. This is the perfect time to start looking at swimwear (active!).
     
  3. Many Amoena retailers offer Spring Fit Events! Best reason yet. Use the Amoena Fit Events page to find out if there’s a Spring Fit Event near you, and call to make an appointment. Experts will be on-hand to help you evaluate your prosthesis and your bras — they can also introduce you to new products, like our popular Valletta tanks and tees, which we can almost guarantee will become a favorite in your spring wardrobe.

Wearing a properly fitted bra is such a simple pleasure. (That’s why Real Simple magazine recently featured our Amoena Mia full-cup bra in its April issue!) Put an annual reminder on your calendar, and do some spring cleaning in your lingerie drawer.

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Charities we love: Row4ROW and Girls Love Mail

The world is just full of wonderful grassroots organizations, especially the ones that educate, fund and support breast cancer patients and survivors. When an individual is inspired to start an organization like this… I just stand in awe. It’s a lot of hard work, I imagine — actually, I can’t imagine – to get one of those groups off the ground.

Here are two organizations that we’ve had the pleasure of speaking with lately.

Row4ROW 

This summer, the 27-year-old Founder and Coach of Recovery on Water, Jenn Gibbons, plans to row the entire 1,500-mile perimeter of Lake Michigan, solo. Recovery on Water is a charitable organization that invites breast cancer survivors to get fit — and be part of a supportive team – through the sport of rowing. All of the funds raised during Jenn’s journey will help Recovery on Water provide its programs to more women. You have to see this recent video:

 

We’ll include a short article about Row4ROW in the next issue of Amoena Life magazine. In the meantime, Jenn’s counting down until her launch date! If you’re on her route, definitely plan to go cheer her on this summer!

Girls Love Mail

I loved having pen-pals as a kid; maybe that’s why I can’t get enough of this little charity. Girls Love Mail is a letter-writing campaign for newly diagnosed women, and those in the thick of the treatment phase. It’s as simple as this: You write a letter, and they deliver it to someone who needs a kind word. I’ve signed up for this one but haven’t yet sat down with my pen and notecards… I hope to do my first one this weekend (it’s supposed to be rainy – perfect letter-writing conditions, in my book).

We talked with founder and author, Gina Mulligan, last month for our piece at letter-boxTheBreastCareSite.com. She’s just delightful. And she’s launched an impressive campaign this year, as well — the Mile of Mail! Join her to help send 5,280 letters in 2012. I would love to hear if you decide to do this (leave me a comment)!

Posted in Breast Cancer Advocacy, Breast Cancer Survivors, Sites We Like, Support Groups, Videos | Tagged , , , , , | 1 Comment

President’s Message: Thanks for attending POWER

We’ve just returned from our second annual POWER Symposium that Amoena co-sponsors with Juzo. POWER is a gathering of Amoena and Juzo retailers from across the country. What a fantastic week: Not only did we have excellent speakers and guests – I especially enjoyed the keynote from Marshal Cohen on new consumer trends – but we also had a whole lot of fun. It happened to be Juzo’s 100th anniversary so we all enjoyed a lively week with plenty of powerful inspiration and ideas for continued success in 2012.

Conferences can be hit or miss. But POWER was a winner. It was the right people at the right place for the right amount of time. The conference was packed with our retail partners – all ready to empower themselves with the most up-to-date information and skills to help them be the best they can be. And the conference delivered on all fronts. 

Amoena’s retail partners are the heart and soul of what continually makes Amoena a success. So I was delighted to spend time with them, hearing stories, making new connections, and hopefully instilling some excitement about great things in store. At Amoena we listen closely to our retailers because they’re interacting with our customers on a daily basis.

There was another inspiring facet to POWER which may be invisible to the casual onlooker. All of POWER’s attendees share a passion for cancer awareness. Many survivors, and many stories of strength and perseverance. 

Thanks to all of you for your continued confidence and trust. And please let me know if you have any questions, comments, or ideas that you want to share.

Posted in Amoena Tradeshows, Fit Specialists, Inside Amoena, President's Message, Uncategorized | Tagged , , | 2 Comments